13 Papers
38 Citations
Annette Duck is an academic researcher from University Hospital of South Manchester NHS Foundation Trust. The author has contributed to research in topics: Idiopathic pulmonary fibrosis & Medicine. The author has an hindex of 5, co-authored 13 publications.
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Papers
European IPF Patient Charter: unmet needs and a call to action for healthcare policymakers
Francesco Bonella,Marlies S. Wijsenbeek,Maria Molina-Molina,Annette Duck,Rosalba Mele,Klaus Geissler,Wim A. Wuyts +6 more
TL;DR: The aim of this patient–physician initiative was to gather perceptions from European idiopathic pulmonary fibrosis (IPF) patient advocacy groups regarding inequalities and unmet needs in IPF care, in order to develop a Patient Charter to advocate for better care.
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Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis
TL;DR: There is an urgent need for a better understanding of the difficulties faced by people with Idiopathic Pulmonary Fibrosis and their carers to develop better supportive care in the United Kingdom and ultimately improve the quality of life of these patients.
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Real world experiences: pirfenidone is well tolerated in patients with idiopathic pulmonary fibrosis.
TL;DR: It is shown that in the real world pirfenidone is well tolerated and with expert regular specialist review adherence can be optimised and improved.
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IPF Care: A Support Program for Patients with Idiopathic Pulmonary Fibrosis Treated with Pirfenidone in Europe
TL;DR: Analysis of results demonstrates a low rate of discontinuation from the IPF Care program, and provides insight into the questions and concerns that patients express, not only with respect to pirfenidone (the only approved treatment for IPF at the time of analysis), but also in relation to other aspects of living with IPF.
Cross-Atlantic modification and validation of the A Tool to Assess Quality of Life in Idiopathic Pulmonary Fibrosis (ATAQ-IPF-cA).
Janelle Yorke,Lisa Spencer,Annette Duck,Sarah Ratcliffe,G NgMan Kwong,Mark S Longshaw,Amanda Belkin,Jeffrey J. Swigris +7 more
TL;DR: The reliability and validity of the substantially shortened ATAQ-IPF-cA are acceptable and comparable to the original instrument and are recommended for use in IPF studies in which participants are enrolled from the USA and UK.
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