Narrative ethics

Abstract: Introduction 1. Storytelling in Medicine 2. The Nature and Complexities of Narrative 3. Dimensions of Sickness 4. Sickness, Life Stories, and Self-Respect 5. Types of Stories about Sickness 6. Sick Roles: Practices and Life Plans 7. How Sickness Alters Experience 8. Sickness and Social Relations 9. Stories of Life with Disability 10. Maladaptive Ways of Being Sick 11. What is Narrative Ethics 12. How Does One Do Narrative Ethics 13. Rigor in Narrative Judgements 14. Ethics and the Life-Span Narrative 15. Conclusion: The Patient-Health Professional Relationship as a Narrative

Abstract: Acknowledgments Introduction Part I: Intersubjectivity Chapter 1. Accounts of Self: Exploring Relationality through Literature Maura Spiegel and Danielle Spencer Introduction Self-Telling: Colm Toibin and the Need to Tell Monologue and Dialogue: Dostoevsky and Bakhtin Recognition in Bechdel's Fun Home: Thickening the Story Identification and Refusal in Kazou Ishiguro's Never Let Me Go Conclusion Chapter 2. This Is What We Do, and These Things Happen: Experience, Emotion, and Relationality In The Classroom Maura Spiegel and Danielle Spencer Socio-relational dynamics and medical education The Narrative Medicine Classroom / Workshop Conclusion Part II: Dualism, Personhood, and Embodiment Chapter 3: Dualism and its Discontents I: Philosophy, Literature, and Medicine Craig Irvine and Danielle Spencer "Hi. How are you feeling today?": Tales of Alienation in Healthcare Biomedicine in recent history The Cave and the Machine: Philosophical Roots of Dualism Chapter 4: Dualism and its Discontents II: Philosophical Tinctures Craig Irvine and Danielle Spencer Philosophical Tinctures: Phenomenology and Narrative Hermeneutics Philosophical Narratives: Complexity and Multiplicity Soul Chapter 5: Deliver us from Certainty: Training for Narrative Ethics Craig Irvine and Rita Charon Narrative Ethics of Reading Narrative Ethics of Clinical Practice Ethics of Narrative Medicine Part III: Identities in Pedagogy Chapter 6: The Politics of Pedagogy: Cripping, Queering and Un-homing Health Humanities Sayantani DasGupta Introduction Crip Politics and the Medicalization of Health Humanities Queer Politics and the Problems of Intelligibility Un-Homing Narrative Medicine: Pedagogical Frames Conclusion Part IV: Close Reading Chapter 7: Close Reading: The Signature Method of Narrative Medicine Rita Charon The Origin and Fate of Close Reading Why Narrative Medicine Is Committed to Close Reading Close Reading and Its Progeny, Attentive Listening The Interior Processes of Close Reading Close Reading Enacts the Principles of Narrative Medicine Coda Chapter 8: A Framework for Teaching Close Reading Rita Charon One Way to Teach Close Reading Choosing Texts and Creating Prompts Time Space Voice Metaphor Conclusions and Room for Further Thought Part V: Creativity Chapter 9: Creativity: What, Why, and Where? Nellie Hermann Creativity in Our Everyday Lives What is Creative Writing for, particularly in the clinical context? Forms and Dividends of Creative Writing Creative Writing and Reflective Writing Chapter 10: Can Creativity be Taught? Nellie Hermann Strategies for Writing in the Health Professions A Teaching Tool: The Reading Guide for Reflective Writing The Approach to the Writing Student Finally: focus on the creative spark Part VI: Qualitative Ways of Knowing Chapter 11: The Ethnographic Field: Narrative, Visual, Contextual Edgar Rivera Colon Narrative Prelude Demystifying Qualitative Research Methods An Embodied, Reflexive Practice Making the world visible The Ethnographic Witness Part VI: Clinical Practice Chapter 12: A Narrative Transformation of Health and Health Care Eric Marcus and Rita Charon RC Tells the Clinical Story EM: Concepts-Transference and Transitional Space RC: Concepts-Creativity, Reflexivity, Reciprocity Coda Chapter 13: Clinical Contributions of Narrative Medicine Rita Charon Individual Interview/Relationship Techniques Clinician and Health Care Team Development Novel Narrative Practices Clinicians See Author Biographies Bibliography Index

Abstract: Acknowledgements Introduction: Memory and Anticipation: The Practice of Narrative Ethics, Rita Charon and Martha M. Montello Part I: Narrative Knowledge 1. Narratives of Human Plight: A Conversation with Jerome Bruner, Jerome Bruner 2. The Ethics of Medicine, as Revealed in Literature, Wayne Booth 3. Like an Open Book: Reliability, Intersubjectivity, and Textuality in Bioethics, Laurie Zoloth and Rita Charon Part II: Narrative Components of Bioethics 4. Context: Backward, Sideways, and Forward, Hilde Lindemann Nelson 5. Voice in the Medical Narrative, Suzanne Poirer 6. Time and Ethics, Rita Charon 7. The Idea and Character, Anne Hunsaker Hawkins 8. Plot: Framing Contingency and Choice in Bioethics, Tod Chambers and Kathryn Montgomery 9. The Reader's Response and Why It Matters in Biomedical Ethics, Charles M. Anderson and Martha Montello Part III: Case Studies in Narrative Ethics 10. The Narrative of Rescue in Pediatric Practice, Walter Robinson 11. Beyond the Authoritative Voice: Casting a Wide Net in Ethics Consultation, Susan Rubin 12. Of Symbols and Silence: Using Narrative and Its Interpretation to Foster Physician Understanding, Marcia Day Childress 13. Narrative Understanding and Methods in Psychiatry and Behavioral Health, Richard Martinez 14. In the Abscence of Narrative, Julie Connelly Part IV: Consequences of Using Narrative Methods 15. Narrative Ethics and Institutional Impact, Howard Brody 16. Reconsidering Action: Day-to-Day Ethics in the Work of Medicine, John Lantos17. The Color of the Wallpaper: Training for Narrative Ethics, Anne Hudson JonesPart V: The Narrative Future of Ethics Practice 18. The Hyphenated Space: Liminality in the Doctor-Patient Relationship, Ronald Carson 19. Narrative Ethics, Gene Stories, and the Hermeneutics of Consent Forms, Larry Churchill 20. Narrative, Ethics, and Pain: Thinking with Stories, David Morries 21. The Story Inside, Joanne Trautmann Banks Notes on Contributors Permissions Index

Abstract: This article argues that traditional, regulative principles of research ethics offer insufficient guidance for research in the narrative study of lives. These principles presuppose an implicit epistemology that conceives of research participants as data sources, a conception that is argued not tenable for narrative research. The case is made by drawing on recent discussions of research ethics in the qualitative and narrative research literature. This article shows that narrative ethics is inextricably entwined with epistemological issues--namely, issues of narrative ownership and the multiplicity of narrative meaning. Finally, practical recommendations are made for the ethical treatment of research participants in narrative research. The article concludes by situating our approach with respect to the broad range of contemporary perspectives on research ethics.