Exploring the reasons urban and rural-dwelling older adults participate in memory research
Amanda Hunsaker,C. Elizabeth Sarles,Daniel Rosen,Jennifer H. Lingler,Marla Bonacile Johnson,Lisa A. Morrow,Judith Saxton +6 more
TL;DR: Results indicate that participation in memory research was believed to lead to an understanding of memory function and was viewed as a way to address memory concerns and provide a benefit to society.
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Abstract: This study examines how underrepresented older urban and rural-dwelling individuals conceptualize participation in cognitive impairment studies. Nine focus groups were held with urban and rural-dwelling older adults who had participated in a community-based memory screening study. Expected and experienced benefits of research participation were motivators for study participation in all focus groups. Results indicate that participation in memory research was believed to lead to an understanding of memory function. Focus group participants expressed an active interest in research on dementia, and viewed research participation as a way to address memory concerns and provide a benefit to society.
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Analysis of barriers to cognitive screening in rural populations in the United States.
TL;DR: Recommendations for diminishing barriers to screening include the use of storytellers to provide culturally relevant education and informing practitioners of new Medicare coverage for cognitive screening.
26
Older Rural- and Urban-Dwelling Appalachian Adults With Mild Cognitive Impairment.
Meghan Mattos,Beth E. Snitz,Jennifer H. Lingler,Lora E. Burke,Lorraine M. Novosel,Susan M. Sereika +5 more
TL;DR: No differences were found between rural and urban Appalachian residents on MCI symptom severity, however, urban residents reported a longer time lapse from symptom identification to diagnosis than their rural counterparts.
Retaining Participants in Longitudinal Studies of Alzheimer's Disease.
Matthew Gabel,Rebecca Bollinger,Dean W. Coble,Joshua D. Grill,D. F. Edwards,Jennifer H. Lingler,Erin M. Chin,Susan Stark +7 more
TL;DR: Two new areas, improved communication about individual test results and greater feedback about AD research, emerged as the primary factors to improve participation in longitudinal AD research.
18
Older adults' motivations to participate or not in epidemiological research. Qualitative inquiry on a study into dementia in Switzerland.
TL;DR: In this article, the authors identify three main themes for the motivations in favour of participation (personal, related to the outcomes of research, and altruistic motivations), and highlight sub-themes for each theme (eg personal motivations: curiosity; civic engagement; interest in the topic; trust in science; everyone counts; openness; play the game).
Participation of rural patients in clinical trials at a multisite academic medical center.
Adil E. Bharucha,Chung Il Wi,Sushmitha Grama Srinivasan,Hyuckjae Choi,Phillip H. Wheeler,Jennifer R. Stavlund,Daniel A. Keller,Kent R. Bailey,Young J. Juhn +8 more
- 01 Jan 2021
TL;DR: Almost one in three clinical trial participants were rural residents versus one in five in the population, and rural residents travelled further to access clinical trials.
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