Epilepsy in India II: Impact, burden, and need for a multisectoral public health response
51
TL;DR: A multidisciplinary response is needed to address the burden and impact of epilepsy which calls for an integrated and multipronged approach for epilepsy care, prevention, and rehabilitation in a public health model.
read more
Abstract: Epilepsy is a common neurological disorder whose consequences are influenced socially and culturally, especially in India. This review (second of the two part series) was carried out to understand the social impact and economic burden to develop comprehensive program for control and prevention of epilepsy. Epilepsy is known to have adverse effect on education, employment, marriage, and other essential social opportunities. Economic burden associated with epilepsy is very high with treatment and travel costs emerging as an important contributing factor. A vicious cycle between economic burden and poor disease outcome is clear. There is no significant change in the perception, stigma, and discrimination of epilepsy across the country despite improvement in educational and social parameters over the time. The huge treatment gap and poor quality of life is further worsened by the associated comorbidities and conditions. Thus, a multidisciplinary response is needed to address the burden and impact of epilepsy which calls for an integrated and multipronged approach for epilepsy care, prevention, and rehabilitation. Service delivery, capacity building, integration into the existing program, mobilizing public support, and increasing public awareness will be the hallmarks of such an integrated approach in a public health model.
read more
Chat with Paper
AI Agents for this Paper
Find similar papers on Google Scholar, PubMed and Arxiv
Write a critical review of this paper
Analyze citations of this paper to find unaddressed research gaps
Citations
Stress and perceived stigma among parents of children with epilepsy.
TL;DR: Findings indicated that most of the parents of children with chronic seizures perceived reactions of others to be negative and would limit family social interaction which resulted into emotional reaction in the form of anger, guilt, fear, anxiety, and depression.
Individualised prediction of drug resistance and seizure recurrence after medication withdrawal in people with juvenile myoclonic epilepsy: A systematic review and individual participant data meta-analysis
Remi Stevelink,Dania Al-Toma,Floor E. Jansen,Herm J. Lamberink,Ali A. Asadi-Pooya,Mohsen Farazdaghi,Gonçalo Cação,Sita Jayalakshmi,Anuja Patil,Ciḡdem Özkara,Şenay Aydın,Joanna Gesche,Christoph P. Beier,Linda J. Stephen,Martin J. Brodie,Gopeekrishnan Unnithan,Ashalatha Radhakrishnan,Julia Höfler,Eugen Trinka,Roland Krause,Emanuele Cerulli Irelli,Carlo Di Bonaventura,Jerzy P. Szaflarski,Laura E. Hernández-Vanegas,Monica L. Moya-Alfaro,Yingying Zhang,Dong Zhou,Nicola Pietrafusa,Nicola Specchio,G. Japaridze,Sándor Beniczky,Mubeen Janmohamed,Patrick Kwan,Marte Syvertsen,Kaja Kristine Selmer,Bernd J. Vorderwülbecke,Martin Holtkamp,Lakshminarayanapuram Gopal Viswanathan,Sanjib Sinha,Betül Baykan,Ebru Altindag,Felix von Podewils,Juliane Schulz,Udaya Seneviratne,Alejandro Viloria-Alebesque,Ioannis Karakis,Wendyl D'Souza,Josemir W. Sander,Bobby P. C. Koeleman,Willem M. Otte,Kees P.J. Braun +50 more
TL;DR: This article performed an individual participant data (IPD) meta-analysis based on a systematic search in EMBASE and PubMed, including prospective and retrospective observational studies reporting on treatment outcomes of people diagnosed with juvenile myoclonic epilepsy and available seizure outcome data after a minimum one-year follow-up.
26
Increased burden of disease and role of health economics: Asia-pacific region
Shahid Shah,Ghulam Abbas,Muhammad Hanif,Anees-Ur-Rehman,Muhammad Zaman,Nabeel Riaz,Arslan Altaf,Shams Ul Hassan,Usman Saleem,Abid Shah +9 more
TL;DR: A review of the economic burden of health to patients in Asian countries is provided to provide evidence that diseases are linked to the low socio-economic status of the Asian population.
23
Stigma and Polytherapy: Predictors of Quality of Life in Patients with Epilepsy from South India.
TL;DR: Besides control of seizures, encouragement of monotherapy and destigmatization campaigns may improve the quality of life of people with epilepsy, especially among PWE.
18
Preventing Multimorbidity with Lifestyle Interventions in Sub-Saharan Africa: A New Challenge for Public Health in Low and Middle-Income Countries
TL;DR: In this paper, a Narrative review which scoped the most recent evidence in low and middle-income countries about multimorbidity determinants and appropriated them for potential multimorebidity prevention strategies was presented.
15
References
•Journal Article
Methods for the economic evaluation of health care programmes, 3rd ed
TL;DR: The “blue book” systematises and summarises recent knowledge on the main types of economic evaluations, thereby providing a useful overview including sources of further readings.
2.8K
The global burden and stigma of epilepsy.
TL;DR: The burden of epilepsy may be due to the physical hazards of epilepsy resulting from the unpredictability of seizures, the social exclusion as a result of negative attitudes of others toward people with epilepsy, and the stigma.
839
The cost of epilepsy in the United States: an estimate from population-based clinical and survey data.
Charles E. Begley,Melissa Famulari,John F. Annegers,David R. Lairson,Thomas F. Reynolds,Sharon P. Coan,Stephanie Dubinsky,Michael Newmark,Cynthia L. Leibson,Elson L. So,Walter A. Rocca +10 more
TL;DR: 1995 estimates of the lifetime and annual cost of epilepsy in the United States using data from patients with epilepsy, and adjusting for the effects of comorbidities and socioeconomic conditions are provided.
624
Global disparities in the epilepsy treatment gap: a systematic review
TL;DR: A systematic review of the peer-reviewed literature published from 1 January 1987 to 1 September 2007 in all languages using PubMed and EMBASE was conducted in this article to describe the magnitude and variation of the epilepsy treatment gap worldwide.
436
The treatment gap in epilepsy: the current situation and ways forward.
TL;DR: A number of recent projects and interventions have been effective in delivering appropriate treatment to people with epilepsy in underresourced countries of the developing world and it is hoped that these may be transferable elsewhere.
403