Background: Cancer care is a complex care process and is associated with generating a variety of data during the
care process. Therefore, it seems that designing and using information systems is necessary to enhance the accessibility,
organization and management of cancer-related data. The aim of this study was to identify users’ requirements of an
oncology information system (OIS). Methods: This was a qualitative study conducted in 2018. In depth semi-structured
interviews were performed with clinicians and non-clinicians in five teaching hospitals to identify users’ requirements.
Data were analyzed by using framework analysis. Results: The four themes emerged from data analysis included: a)
methods of recording cancer data in the hospitals, b) required cancer data in different departments, c) comprehensive
cancer care documentation, and d) required functions of an oncology information system. Conclusion: According
to the results, currently, electronic documentation is less frequently used for cancer patients. Therefore, an extensive
effort is needed to identify users’ requirements before designing and implementing an oncology information system.
As multidisciplinary teams are involved in cancer care, all potential users and their requirements should be taken into
account. Such a system can help to collect and use cancer data effectively.

http://journal.waocp.org/article_88795_186092a95e573e7b03d61089b4d952ba.pdf

Oncology Information System: A Qualitative Study of Users' Requirements.

/pdf/a-review-of-oncology-clinical-information-systems-what-are-3o2x3nzefa.pdf

A review of oncology clinical information systems- what are the critical success factors and reasons for system failure?

Introduction Oncologists are usually faced with a huge amount of diagnostic and therapeutic data in the process of cancer care. However, they do not have access to the integrated data. This research aimed to present a conceptual model of an oncology information system based on the users' requirements. Methods This study was conducted in 2019 and composed of two phases. Initially, a questionnaire was designed, and clinical experts (n=34) were asked to identify the most important data elements and functional requirements in an oncology information system. In the second phase, conceptual, structural and behavioral diagrams of the system were drawn based on the results of the first phase. These diagrams were also reviewed and validated by five experts. Results Most of the data elements and all functional requirements were found important by the experts. The data elements were related to different phases of cancer care including screening, prevention, diagnosis, treatment, mental care and pain relief, and end-of-life care. Then, conceptual, structural and behavioral diagrams of the system were designed and approved by the experts or revised based on their comments. Conclusion The conceptual model and the diagrams presented in the current study can be used for developing an oncology information system. This system will be able to manage patients' cancer data from screening to the end-of-life care. However, the system needs to be designed and implemented in a real healthcare setting to see how it can meet users' requirements.

/pdf/a-conceptual-model-of-an-oncology-information-system-3bxf5g0300.pdf

A Conceptual Model of an Oncology Information System

Gastric cancer is one of the most common gastrointestinal cancers. Patients with gastric cancer experience disabilities and complications that lead to reduced quality of life. Empowering these patients by providing them with information and self-management skills can help reduce side effects and improve their quality of life.The aim of this study was to identify the user requirements for developing a mobile-based self-management app to support patients with gastric cancer.Data were analyzed using descriptive statistics and frequency distribution reports using IBM SPSS Statistics software.All of the data elements and functional requirements except "data recording times" and "weight changes in graphs" were identified as essential by clinical experts and patients. Among the functional requirements required in a gastric cancer self-management app, the capabilities related to informing, announcing warnings, and reminders are included. In the demographic data section, most patients (14/26, 53%) did not comment on the importance of recording data such as name, surname, and place of residence, and the demographic data section was met with less agreement from patients than clinicians.Applying the requirements mentioned in this study can improve the self-management of patients with gastric cancer. Such apps can play an important role in empowering patients and improving their quality of life. However, the apps need to be designed and implemented to see how they can meet users' requirements. 

Requirements of mobile-based self-management application for patients with gastric cancer: specialists and patients perspective (Preprint)

Background Gastric cancer is one of the most common gastrointestinal cancers. Patients with gastric cancer experience disabilities and complications that lead to reduced quality of life. Empowering these patients by providing them with information and self-management skills can help reduce side effects and improve their quality of life. Objective The aim of this study was to identify the user requirements for developing a mobile-based self-management app to support patients with gastric cancer. Methods Data were analyzed using descriptive statistics and frequency distribution reports using IBM SPSS Statistics software. Results All of the data elements and functional requirements except “data recording times” and “weight changes in graphs” were identified as essential by clinical experts and patients. Among the functional requirements required in a gastric cancer self-management app, the capabilities related to informing, announcing warnings, and reminders are included. In the demographic data section, most patients (14/26, 53%) did not comment on the importance of recording data such as name, surname, and place of residence, and the demographic data section was met with less agreement from patients than clinicians. Conclusions Applying the requirements mentioned in this study can improve the self-management of patients with gastric cancer. Such apps can play an important role in empowering patients and improving their quality of life. However, the apps need to be designed and implemented to see how they can meet users’ requirements.

Mobile-Based Self-management Application Requirements for Patients With Gastric Cancer: Quantitative Descriptive Study of Specialist and Patient Perspectives

We have developed a data archiving system for study of charged particle therapy. We required a data-relation mechanism between electronic medical record system (EMR) and database system, because it needs to ensure the information consistency. This paper presents the investigation results of these techniques. The standards in the medical informatics field that we focus on are Integrating the Healthcare Enterprise (IHE) and 2) Health Level-7 (HL7) to archive the data. As a main cooperation function, we adapt 2 integration profiles of IHE as follows, 1) Patient Administration Management (PAM) Profile of IHE-ITI domain for patient demographic information reconciliation, 2) Enterprise Schedule Integration(ESI) profile of IHE-Radiation Oncology domain for order management between EMR and treatment management system(TMS). We also use HL7 Ver2.5 messages for exchanging the follow-up data and result of laboratory test. In the future, by implementation of this system cooperation, we will be able to ensure interoperability in the event of the EMR update.

Development of clinical database system specialized for heavy particle therapy

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Development of clinical database system specialized for heavy particle therapy