Children with Special Health Needs are limited in carrying out activities of daily living, leaving them partially or totally dependent on their family members or caregivers. A descriptive study with a qualitative approach, aiming to describe and analyze the challenges experienced by family members in the care of children with special health needs. Data collection was carried out at a rehabilitation center in a state in the northeast of Brazil, from March to May 2016. It was conducted with 15 caregivers, using a semi-structured interview script. From the analysis of the speeches, three thematic categories emerged: The (re) organization of the life of caregivers and relatives of children with special needs, the context of the health care network and problems with the social network of the insertion of special needs children. The results show a predominance of caregivers, in the age group of 31 to 40 years. Mostly women, with study between six and twelve years. It is observed that special needs children change the whole daily life of the family, which needs a special adaptation to maintain integral assistance to the family, and still needs to (re) structure to maintain the family's necessary living conditions. The care and treatment provided by the reference service to the interviewed group was considered satisfactory, but these still indicate that the network does not guarantee access and care, proportional to the health needs of each user. There is difficult access to transportation for children and their caregivers. Accessibility still being a limiting issue. It is concluded, with this study, that there is a need for the social inclusion of these children, the awareness of the population in welcoming the child and the importance of socialization, so that the challenges experienced by the caregivers of these children will diminish or cease to exist.

/pdf/family-challenges-experienced-in-the-care-of-children-with-572r0e0crr.pdf

Family challenges experienced in the care of children with special health needs

The purpose of this study was to get a review about the scientific production shown by the Brazilian indexed literature at the psychology area for the period between 1999 and 2008. It was based on empiric studies, which described distinct interactions between children with special educational needs and their relatives, as well as the implications for their development, seen by different theoretical perspectives. A systematic search has been done using data registered in three bibliographic bases (SCIELO, LILACS and Capes periodic reviews). The key words used were: families with deficient children, special education needs, family, familiar relations, brothers, fraternal relations. A number of 17 articles was found. They were analyzed considering different aspects (periodic reviews in which they were published, related variables, collecting techniques and main results obtained. It could be seen that the theme has been scarcely studied.

/pdf/familiar-interactions-of-children-with-special-educational-40p99g0ppw.pdf

Familiar interactions of children with special educational needs: National Brazilian literature revision

Pesquisa qualitativa, exploratoria, descritiva que objetivou compreender as implicacoes do cuidar de uma Crianca com Necessidades Especiais de Saude para a familia Os dados foram coletados com dez familias, entre janeiro e fevereiro de 2012, por meio da triangulacao de tecnicas: coleta em prontuarios, entrevista semiestruturada e a construcao do genograma e ecomapa A analise seguiu os principios da analise de conteudo tematica Os resultados apontaram que a descoberta do diagnostico traz implicacoes para a familia, principalmente quando se trata do diagnostico tardio Para as redes sociais restritas e especificas, as dificuldades enfrentadas pelas familias dessas criancas no acesso aos servicos de saude e educacionais Essas dificuldades evidenciadas repercutem no cuidado diario das criancas com necessidades de saude e com o tempo, cedem lugar a rotina e a adaptacao a vida cotidiana de suas familias, desencadeando mudancas que implicam na reestruturacao familial Conclui- se que a reorganizacao das familias acontece a partir da condicao de doenca da crianca estabelecida As dificuldades enfrentadas por estas familias relacionam-se a integralidade e acessibilidade aos servicos e acoes de saude e pode gerar repercussoes na condicao de vida da crianca e sua familia e a necessidade de reconfiguracoes para o cuidado familial Recomenda-se o reconhecimento e valorizacao da familia como unidade de cuidado, a promocao e articulacao das redes de apoio para a reorganizacao familiar e acoes centradas na saude da crianca e sua familia%%%%Qualitative research, exploratory, descriptive study aimed to understand the implications of caring for a Child with Special Needs Health for the family Data were collected with ten families, between January and February 2012, through triangulation techniques, collecting records, semi-structured interview and the construction of the genogram and eco-map The analysis followed the principles of thematic content analysis The results showed that disclosure of the diagnosis has implications for the family, especially when it comes to late diagnosis For social networks and specific restricted, the difficulties faced by the families of these children access to health services and education These difficulties highlighted reverberate in the daily care of children with health needs and in time, give way to routine and adapting to everyday life for their families, triggering changes in restructuring involving familial We conclude that the reorganization of families happens from the disease condition of the child established The difficulties faced by these families are related to the completeness and accessibility of health services and actions and can generate repercussions on living conditions of children and their families and the need for reconfigurations for family care It is recommended the recognition and appreciation of the family as the unit of care, promotion and coordination of support networks for family reorganization and actions centered on the health of the child and his family

Implicações do cuidar de crianças com necessidades especiais de saúde: possibilidades para o cudado familial e de enfermagem

Cotidiano de cuidado da equipe de enfermagem às crianças com necessidades especiais de saúde hospitalizadas e suas famílias

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Family challenges experienced in the care of children with special health needs