http://mobcdhb.palliativecare.org.nz/Paed%20Pall%20Care%20Lancet%202007.pdf

Paediatric palliative care: challenges and emerging ideas

Nurses' Knowledge of Pain Assessment and Management: How much Progress Have We Made?

Although motor deficits are gaining attention in autism research much less attention has been paid to the physical activity patterns in this group of children. The participants in this study were a group of children with autism spectrum disorder (N = 72) between the ages of 9-18 years. This cross-sectional study explored the physical activity patterns of seventy-two children with autism spectrum disorder as they aged. Results indicated significant differences between the mean time spent in moderate to vigorous physical activity and the mean time spent in sedentary activity. Older children with autism spectrum disorder are significantly more physically inactive, compared to younger children. Physical activity programs and interventions need to address this deficit, in physical activity. Children with autism have a similar trend in physical activity patterns compared to their peers without autism; associated benefits and future research will be discussed.

/pdf/the-physical-activity-patterns-of-children-with-autism-3gm6jyfvrr.pdf

The physical activity patterns of children with autism

The study team conducted a systematic review of pediatric and adolescent palliative cancer care literature from 1995 to 2015 using four databases to inform development of a palliative care psychosocial standard. A total of 209 papers were reviewed with inclusion of 73 papers for final synthesis. Revealed topics of urgent consideration include the following: symptom assessment and intervention, direct patient report, effective communication, and shared decision-making. Standardization of palliative care assessments and interventions in pediatric oncology has the potential to foster improved quality of care across the cancer trajectory for children and adolescents with cancer and their family members.

https://onlinelibrary.wiley.com/doi/pdf/10.1002/pbc.25695

Palliative Care as a Standard of Care in Pediatric Oncology.

Background:Despite standardization in disease assessments and curative interventions for childhood cancer, palliative assessments and psychosocial interventions remain diverse and disparate.Aim:Identify current approaches to palliative care in the pediatric oncology setting to inform development of comprehensive psychosocial palliative care standards for pediatric and adolescent patients with cancer and their families. Analyze barriers to implementation and enabling factors.Design:Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines framed the search strategy and reporting. Data analysis followed integrative review methodology.Data sources:Four databases were searched in May 2014 with date restrictions from 2000 to 2014: PubMed, Cochrane, PsycINFO, and Scopus. A total of 182 studies were included for synthesis. Types of studies included randomized and non-randomized trials with or without comparison groups, qualitative research, prior reviews, expert opinion, and consensus report....

/pdf/establishing-psychosocial-palliative-care-standards-for-6hr3f11vpg.pdf

Establishing Psychosocial Palliative Care Standards for Children and Adolescents with Cancer and Their Families: An integrative review

In den Anfangen der beruflichen Kinderkrankenpflege hatten Kinderkrankenschwestern nur wenige Moglichkeiten der Schmerzbehandlung bei Kindern. Zudem wurden Schmerzen allgemein als unvermeidbar verstanden — „sie gehorten einfach dazu“ (Zimmermann 2007). Kindern wurde die Fahigkeit, Schmerzen empfinden zu konnen, abgesprochen, und vorhandene Moglichkeiten medikamentoser und nichtmedikamentoser Therapien wurden nicht effektiv umgesetzt.

Arbeitsgebiete der Kinderkrankenpflege

Background In order to provide efficient pain treatment clinicians need to know the latest developments in pain management and to implement this knowledge into clinical practice. The knowledge of pediatric nursing staff with regards to pediatric pain management has not yet been investigated. In this study we therefore investigated nurses' knowledge of pediatric pain management strategies. Methods Nursing staff knowledge was analyzed using the German version of the PNKAS-Sr2002. This questionnaire was distributed to 310 pediatric nurses and the response rate was 51.3% (n=159). Analyses of variance (ANOVA) were conducted to examine whether educational level and work experience had an influence on knowledge. Independent from work experience the educational level of nurses is important for their knowledge in pediatric pain management. Results On average nurses obtained a mean individual test score of 69.3%. Nurses with advanced qualification and nurses with 6-10 years work experience obtained the highest scores. Conclusion Pediatric nurses must be trained more efficiently in pediatric pain management so that an adequate pain management is available for children and adolescents.

[Pediatric pain management: what do German nurses know?].

In Deutschland existiert keine Kinderpalliativstation. Dabei konnten dort tatige Kinderpalliativmediziner ambulant niedergelassene Kinderarzte beraten, dort tatige Krankenschwestern konnten ambulante Kinderkrankenpflegedienste in der Versorgung sterbender Kinder unterstutzen. Kinderhospize bieten insbesondere Entlastungspflege an, mit dem Ziel, es Kindern zu ermoglichen, im familiaren Umfeld zu sterben. In Deutschland scheint der Bedarf an Kinderhospizbetten gedeckt, nicht jedoch an ambulanten Kinderhospizdiensten zur Begleitung der Familie durch Unterstutzung im Alltag. Auserhalb von Modellprojekten existiert hierzulande noch kein ambulanter Kinderpalliativdienst; vereinzelt wurden klinikgestutzte Dienste eingerichtet. Das Institut fur Kinderschmerztherapie und Padiatrische Palliativmedizin (IKP) an der Vestischen Kinder- und Jugendklinik Datteln, erstellte das Curriculum zur Zusatzweiterbildung Palliativversorgung und bietet jetzt eine entsprechende Weiterbildung an. Das bundesdeutsche Vergutungssystem bildet komplexere Versorgungssysteme nicht angemessen ab, hier besteht dringender Regelungsbedarf: Finalpflege kann zwar abgerechnet werden, aber bei weitem nicht kostendeckend. Die derzeitige Regelung der Finanzierung stationarer Hospizarbeit berucksichtigt nicht die Besonderheiten stationarer Kinderhospizarbeit. Die Vergutung der ambulanten padiatrischen Palliativmedizin ist uberhaupt nicht gesetzlich geregelt.

Palliativversorgung von Kindern in Deutschland

„Die Pflege eines Sterbenden muss zuallererst seine physischen Bedurfnisse Berucksichtigen“. (Kubler-Ross 2000)

Symptomerfassung und -therapie

/pdf/interdisziplinar-und-multiprofessionell-im-besten-sinn-erste-45iq89r336.pdf

Interdisziplinär und multiprofessionell im besten Sinn - Erste interdisziplinäre Kinderschmerzambulanz in Deutschland

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